Abstract
Objectives
The following research questions are addressed: (1) What does the German public know about dementia? (2) Are social factors, care experience and contact with dementia patients associated with knowledge about dementia? (3) Is knowledge associated with attitudes/beliefs about dementia?
Methods
Analyses are based on a German mail survey conducted in 2012. Sample consists of persons aged 18–79 years. 1795 persons filled out the questionnaire (response rate 78 %). Respondents were asked about their knowledge of and attitudes about dementia.
Results
Knowledge about cause, prevention, diagnosis, treatment and life impact of dementia is characterized by a relatively high uncertainty. People with care experiences and people from higher status groups know more about dementia. People with more knowledge are less likely to believe that dementia patients have a high quality of life, but tend to be less skeptical about early detection of dementia.
Conclusions
To increase knowledge, reduce uncertainty and modify attitudes towards dementia and those who are afflicted, educational programs and contact-based approaches should be considered.
Access this article
We’re sorry, something doesn't seem to be working properly.
Please try refreshing the page. If that doesn't work, please contact support so we can address the problem.
Similar content being viewed by others
References
Angermeyer MC, Holzinger A, Matschinger H (2010) Emotional reactions to people with mental illness. Epidemiol Psichiatr Soc 19:26–32
Bédard M, Kuzik R, Chambers L, Molloy DW, Dubois S, Lever JA (2005) Understanding burden differences between men and women caregivers: the contribution of care-recipient problem behaviors. Int Psychogeriatr 17:99–118
Bickel H (2000) Dementia and Alzheimer’s disease: an estimate of prevalent and incident cases in Germany. Gesundheitswesen 62:211–218
Braun SR, Reiner K, Tegeler C, Bucholtz N, Boustani MA, Steinhagen-Thiessen E (2014) Acceptance of and attitudes towards Alzheimer’s disease screening in elderly German adults. Int Psychogeriatr 26:425–434
Brodaty H, Thomson C, Thompson C, Fine M (2005) Why caregivers of people with dementia and memory loss don’t use services. Int J Geriatr Psychiatry 20:537–546
Cahill S, Shapiro M (1997) “At first I thought it was age”: family carers detection of and general practitioner’s diagnosis of early stage dementia. New Doctor 67:19–23
Carpenter BD, Balsis S, Otilingam PG, Hanson PK, Gatz M (2009) The Alzheimer’s Disease Knowledge Scale: development and psychometric properties. Gerontologist 49:236–247
Carpenter BD, Zoller SM, Balsis S, Otilingham PG, Gatz M (2011) Demographic and contextual factors related to knowledge about Alzheimer’s disease. Am J Alzheimers Dis Other Demen 26:121–126
Fuller WA (2009) Sampling statistics. Wiley, Hoboken
Hausner L, Damian M, Jekel K, Richter M, Frölich L (2012) Einstellungen und Wahrnehmungen zur Demenz-Versorgung in Deutschland. Daten aus der IMPACT-Umfrage. Dtsch Med Wochenschr 137:1351–1355
Jansen S (2005) The situation of people with dementia and their relatives: support by Deutsche Alzheimer Gesellschaft. Nervenheilkunde 24:507–510
Jorm AF (2000) Mental health literacy: public knowledge and beliefs about mental disorders. Br J Psychiatry 177:396–401
Jorm AF (2012) Mental health literacy: empowering the community to take action for better mental health. Am Psychol 67:231–243
Kaduszkiewicz H, Röntgen I, Mossakowski K, Hvd Bussche (2009) Tabu und Stigma in der Versorgung von Patienten mit Demenz. Z Gerontol Geriat 42:155–162
Kofahl C, Lüdecke D, Döhner H (2009) Der Einfluss von Betreuungsbedarf und psychosozialen Determinanten auf Belastung und Wohlbefinden von pflegenden Angehörigen alter Menschen. Ergebnisse aus der deutschen Teilstichprobe des Projekts EUROFAMCARE. Pflege Ges 3:236–253
Kofahl C, Lüdecke D, Schalk B, Härter M, Ovd Knesebeck (2013) Was weiß und denkt die Bevölkerung über Alzheimer und andere Demenzerkrankungen? In: Böcken J, Braun B, Repschläger U (eds) Gesundheitsmonitor 2013 Bürgerorientierung Im Gesundheitswesen Koop. Bertelsmann Stift. BARMER GEK. Bertelsmann-Stiftung, Gütersloh, pp 39–62
Low L-F, Anstey KJ (2009) Dementia literacy: recognition and beliefs on dementia of the Australian public. Alzheimers Dement 5:43–49
Low L-F, Anstey KJ, Lackersteen SM, Camit M, Harrison F, Draper B, Brodaty H (2010) Recognition, attitudes and causal beliefs regarding dementia in Italian, Greek and Chinese Australians. Dement Geriatr Cogn Disord 30:499–508
Luck T, Luppa M, Sieber J, Schomerus G, Werner P, König H-H, Riedel-Heller SG (2012) Attitudes of the German general population toward early diagnosis of dementia—results of a representative telephone survey. PLoS One 7:e50792
Lüdecke D, Mnich E, Kofahl C (2012) The impact of sociodemographic factors on the utilisation of support services for family caregivers of elderly dependents—results from the German sample of the EUROFAMCARE study. GMS Psycho-Soc-Med Doc06
McKee K, Philp I, Lamura G, Prouskas C, Öberg B, Krevers B, Spazzafumo L, Bien B, Parker C, Szczerbinska K (2003) The COPE Index—a first stage assessment of negative impact, positive value and quality of support of caregiving in informal carers of older people. Aging Ment Health 7:39–52
Mukadam N, Livingston G (2012) Reducing the stigma associated with dementia: approaches and goals. Aging Health 8:377–386
Mukadam N, Sampson EL (2011) A systematic review of the prevalence, associations and outcomes of dementia in older general hospital inpatients. Int Psychogeriatr 23:344–355
Nordhus IH, Sivertsen B, Pallesen S (2012) Knowledge about Alzheimer’s disease among Norwegian psychologists: the Alzheimer’s disease knowledge scale. Aging Ment Health 16:521–528
Pentzek M, Fuchs A, Abholz HH (2005) Die Einstellung der Hausärzte zu Dementen. Kognitive, affective und externe Komponenten. Nervenheilkunde 6:499–506
Perrig-Chiello P (2007) Mental health in public health—the necessity of a life-span perspective. Int J Public Health 52:129–130
Piko BF (2007) New challenges for mental health in public health. Int J Public Health 52:127–128
Pinquart M, Sörensen S (2006) Gender differences in caregiver stressors, social resources, and health: an updated meta-analysis. J Gerontol B Psychol Sci Soc Sci 61:P33–P45
Prince M, Prina M, Guerchet M (2013) World Alzheimer Report 2013. Journey of Caring. An analysis of long-term care for dementia. Alzheimer’s Disease International, London
R Core Team (2014) R: a language and environment for statistical computing. R foundation for statistical computing, Vienna, Austria
Rüsch N, Angermeyer MC, Corrigan PW (2005) Mental illness stigma: concepts, consequences, and initiatives to reduce stigma. Eur Psychiatry 20(8):529–539
Scerri A, Scerri C (2013) Nursing students’ knowledge and attitudes towards dementia—a questionnaire survey. Nurse Educ Today 33:962–968
Schwalen S, Förstl H (2008) Alzheimer’s disease: knowledge and attitudes in a representative survey. Neuropsychiatrie 22:35–37
Skinner C, Mason B (2012) Weighting in the regression analysis of survey data with a cross-national application. Can J Stat 40:697–711
Statistisches Bundesamt (2015) Startseite - Statistisches Bundesamt (Destatis). https://www.destatis.de/DE/Startseite.html. Accessed 18 May 2015
von dem Knesebeck O, Mnich E, Daubmann A, Wegscheider K, Angermeyer MC, Lambert M, Karow A, Härter M, Kofahl C (2013) Socioeconomic status and beliefs about depression, schizophrenia and eating disorders. Soc Psychiatry Psychiatr Epidemiol 48:775–782
von dem Knesebeck O, Angermeyer MC, Lüdecke D, Kofahl C (2014) Emotional reactions toward people with dementia—results of a population survey from Germany. Int Psychogeriatr 26:435–441
Werner P (2003) Knowledge about symptoms of Alzheimer’s disease: correlates and relationship to help-seeking behavior. Int J Geriatr Psychiatry 18:1029–1036
Zawadzki L, Mondon K, Peru N, Hommet C, Constants T, Gaillard P, Camus V (2011) Attitudes towards Alzheimer’s disease as a risk factor for caregiver burden. Int Psychogeriatr 23:1451–1461
Ziegler U, Doblhammer G (2009) Prevalence and incidence of dementia in Germany—a study based on data from the public sick funds in 2002. Gesundheitswesen 71:281–290
Acknowledgments
We thank Bertelsmann Stiftung for the opportunity to integrate questions on dementia literacy in “Gesundheitsmonitor 2013” and for providing the dataset for the present analyses.
Author information
Authors and Affiliations
Corresponding author
Rights and permissions
About this article
Cite this article
Lüdecke, D., von dem Knesebeck, O. & Kofahl, C. Public knowledge about dementia in Germany—results of a population survey. Int J Public Health 61, 9–16 (2016). https://doi.org/10.1007/s00038-015-0703-x
Received:
Revised:
Accepted:
Published:
Issue Date:
DOI: https://doi.org/10.1007/s00038-015-0703-x